Paediatric Metabolic Disease Clinical Nurse Specialist (CNS)

Paediatric Metabolic Disease Clinical Nurse Specialist (CNS) University Hospitals Bristol and Weston NHS Foundation Trust (UHBW)

We have an exciting position in the paediatric metabolic CNS team. The Southwest regional metabolic department cares for over 650 patients across the region. The metabolic CNS is often the first point of contact for enquiries from patients, relatives & other professionals.

Patients require specialist tests for diagnosis & monitoring, many are at risk of becoming ill very quickly & need emergency management rapidly & appropriately.

A metabolic CNS will:

• Organise emergency alerts & illness management
• Conduct specialist tests, investigations & infusions
• Provide education to health care professionals & families
• Provide practical & emotional support to patients & families with rare disorders

This is an opportunity for a paediatric nurse with excellent verbal & written communication skills to work in a specialist team & autonomously, using their own initiative, demonstrating problem solving skills & excellent organisational skills.

This role is essential in supporting patients & their families from diagnosis, ongoing care, & management to transition or end of life care. You must be able to work flexibly to provide a safe, friendly and efficient regional service.

You will be part of the established CNS team providing care to all aspects of the metabolic service.

If you have a desire to progress your career, provide the best care for children and their families/carers with metabolic disorders, we would love to hear from you.

Main duties of the job

• Provide patients and staff with specialist advice to manage complex symptoms for both inpatient and outpatient care including emergency alerts and illness management
• Develop, improve, and promote the service ensuring the delivery of high quality, cost effective care utilising the support and guidance of senior colleagues
• Develop and share expertise within the multidisciplinary team
• Develop the skills to act as a resource in the care of patient's needs, ensuring an optimum level of service to patients and their carers.
• Work closely with community, hospital, relevant network staff and organisations to ensure an effective seamless service.
• Provide effective communication systems of support for patients
• Provide education to professionals, patients and their families
• Build up a skill set to embed patient and public involvement within the sphere of specialist nursing practice.
• Ensure that all patients and families are aware of all treatment options, including clinical trials
• Work as patient advocate, to help negotiate the patient journey and ensure optimum care is provided to each patient.
• Support patient investigations and care including CNS led investigations and patient infusions e.g. enzyme replacement therapy
• Coordinate and plan patient assessments as per care plans and national monitoring e.g NICE managed access agreements
• Provide cross cover to the Paediatric Metabolic, Batten's and Barth Syndrome CNS service

About us

University Hospitals Bristol and Weston NHS Foundation Trust (UHBW) is one of the largest acute Trusts in the country, bringing together a combined workforce of over 13,000 staff and over 100 different clinical services across 10 different sites, serving a core population of more than 500,000 people across South West England. UHBW has been rated by the CQC as 'Good' overall and our staff are proud to deliver excellent care to the people of Bristol, Weston and beyond.

Job responsibilities

For a more detailed job description and main responsibilities, please refer to the job description document attached to this vacancy.

Person Specification Qualifications and Training

• RSCN/ RN Child Branch
• Current NMC Registration
• 1st Degree In nursing or health related subject, willing to undertake/ working towards
• Qualification in Teaching and Assessing
• Evidence of masters level academic study or willingness to work towards Masters (in relevant health related subject)
• Clinical skills e.g. venepuncture, cannulation

Public Sector Language Competency

• Be able to speak fluent English to an appropriate standard

Knowledge & Experience

• Appropriate proven leadership and management experience
• Proven commitment and experience, evidence in teaching
• Appropriate post registration speciality experience
• Experience of undertaking research or audit projects
• Evidence of commitment to research based practice or evidence of project work undertaken

Skills & Abilities

• Organisation and management skills
• Teaching
• Ability to work effectively under pressure
• Ability to problem solve
• Flexibility, adaptability to meet needs of a changing service
• Ability to work alone or as part of a team
• Ability to cope with emotional issues presented in the course of work, and to support others
• Knowledge of national and local specialty specific issues
• IT skills including use of email and Microsoft office packages
• Act as a role model and as a mentor/assessor
• Innovative and participates with practice and policy change
• Awareness of professional responsibilities to self and others
• Commitment to the development and provision of high quality nursing care
• Excellent interpersonal and communication skills
• Awareness of current national changes in nursing / NHS
• Ability to develop own clinical skills and a willingness to participate in continuing professional development
• Recognition of own limits
• Respecting Everyone
• Recognising Success
• Working Together

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.