Paediatric Metabolic Disease Clinical Nurse Specialist (CNS)

Paediatric Metabolic Disease Clinical Nurse Specialist (CNS) Band 6

Main area: Paediatric Clinical Nurse Specialist Grade Band 6

Contract: Permanent

Hours: Part time - 30 hours per week

Job ref: 387-WC4627-DA

Site: Bristol Royal Hospital for Children

Town: Bristol

Salary: £37,338 - £44,962 pa pro rata

Salary period: Yearly

Closing: 24/03/:59

Interview date: 04/04/2025

As an organisation, we recognise the value of a healthy work-life balance. When applying, speak to us about how we might be able to accommodate flexible working, so your work life fits around your home life.

We particularly welcome applications from Black, Asian, and minority ethnic candidates as they are under-represented within the Trust.

We have an exciting position in the paediatric metabolic CNS team:

The Southwest regional metabolic department cares for over 650 patients across the region. The metabolic CNS is often the first point of contact for enquiries from patients, relatives, and other professionals.

Patients require specialist tests for diagnosis and monitoring; many are at risk of becoming ill very quickly and need emergency management rapidly and appropriately.

Key Responsibilities

A metabolic CNS will:

• Organise emergency alerts and illness management
• Conduct specialist tests, investigations, and infusions
• Provide education to health care professionals and families
• Provide practical and emotional support to patients and families with rare disorders

This is an opportunity for a paediatric nurse with excellent verbal and written communication skills to work in a specialist team and autonomously, using their own initiative, demonstrating problem-solving skills and excellent organisational skills.

This role is essential in supporting patients and their families from diagnosis, ongoing care, and management to transition or end of life care. You must be able to work flexibly to provide a safe, friendly, and efficient regional service.

You will be part of the established CNS team providing care to all aspects of the metabolic service.

If you have a desire to progress your career and provide the best care for children and their families/carers with metabolic disorders, we would love to hear from you.

Main Duties of the Job

• Provide patients and staff with specialist advice to manage complex symptoms for both inpatient and outpatient care including emergency alerts and illness management
• Develop, improve, and promote the service ensuring the delivery of high quality, cost-effective care utilising the support and guidance of senior colleagues
• Develop and share expertise within the multidisciplinary team
• Develop the skills to act as a resource in the care of patient needs, ensuring an optimum level of service to patients and their carers
• Work closely with community, hospital, relevant network staff, and organisations to ensure an effective seamless service
• Provide effective communication systems of support for patients
• Provide education to professionals, patients, and their families
• Build up a skill set to embed patient and public involvement within the sphere of specialist nursing practice
• Ensure that all patients and families are aware of all treatment options, including clinical trials
• Work as patient advocate, to help negotiate the patient journey and ensure optimum care is provided to each patient
• Support patient investigations and care including CNS led investigations and patient infusions e.g. enzyme replacement therapy
• Coordinate and plan patient assessments as per care plans and national monitoring e.g. NICE managed access agreements
• Provide cross cover to the Paediatric Metabolic, Batten's, and Barth Syndrome CNS service

Person Specification Qualifications and Training

• RSCN/ RN Child Branch
• Current NMC Registration
• 1st Degree in nursing or health-related subject, willing to undertake/working towards
• Qualification in Teaching and Assessing
• Evidence of masters level academic study or willingness to work towards Masters (in relevant health-related subject)
• Clinical skills e.g. venepuncture, cannulation

Knowledge & Experience

• Appropriate proven leadership and management experience
• Proven commitment and experience, evidence in teaching
• Appropriate post registration speciality experience
• Experience of undertaking research or audit projects
• Evidence of commitment to research-based practice or evidence of project work undertaken

Skills & Abilities

• Organisation and management skills
• Teaching
• Ability to work effectively under pressure
• Ability to problem solve
• Flexibility, adaptability to meet needs of a changing service
• Ability to work alone or as part of a team
• Ability to cope with emotional issues presented in the course of work, and to support others
• Knowledge of national and local specialty specific issues
• IT skills including use of email and Microsoft office packages
• Act as a role model and as a mentor/assessor
• Innovative and participates with practice and policy change
• Awareness of professional responsibilities to self and others
• Commitment to the development and provision of high quality nursing care
• Excellent interpersonal and communication skills
• Awareness of current national changes in nursing / NHS
• Ability to develop own clinical skills and a willingness to participate in continuing professional development
• Recognition of own limits

We hope that you will decide to join us and become part of this exciting journey, helping us to shape our future together.

IMPORTANT:

This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.

Name: Bethan Clinton

Job title: Metabolic CNS - Team Lead

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