Programme Lead

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

As Programme Lead, you'll manage a portfolio of high-impact projects that drive real improvements to the way we deliver services. You'll shape and oversee programme frameworks that bring innovation and strategic focus to our work, ensuring every project delivers value, on time and on budget. This is a unique opportunity to embed lasting change, influence the future of our services, and champion a culture of continuous improvement across the MND Association.

As Programme Lead, you will oversee a wide range of service improvement projects, providing strategic direction and ensuring consistent, high-quality delivery across the programme. Working closely with Project Managers and senior stakeholders, you will ensure projects are well planned, inclusive, and aligned with the Association's long-term goals.

• Provide strategic leadership and oversight for projects delivered by the Service Improvement & Transformation team.
• Support Project Managers in developing robust project plans, ensuring effective delegation, resource use, and sustainable outcomes.
• Define and agree project scopes with sponsors, setting out clear objectives, resource requirements, timelines, and measures of success.
• Effectively engage and influence stakeholders, including Project Sponsors, Heads of Departments and managers, to drive engagement and secure alignment with the Association's broader strategic objectives.
• Promote innovation and best practices throughout the project lifecycle, supporting a culture of continuous improvement.
• Lead programme-wide stakeholder engagement, acting as the main point of contact for senior internal and external audiences.
• Encourage a collaborative and co-produced approach to project design, ensuring engagement with Association staff, volunteers, and people with lived experience of MND in the project design and implementation phases to ensure accessibility, inclusivity, and relevance.
• Oversee programme reporting and risk management, working closely with Project Managers to monitor progress and escalate issues where needed.
• Manage programme budgets with support from Project Managers, ensuring financial plans are accurate, efficient, and aligned with delivery needs.
• Oversee relationships with external suppliers and partners, ensuring accountability, timely delivery, and contract compliance.

• Proven experience delivering a broad portfolio of projects, ideally in healthcare, non-profit service-led settings.
• Expertise in Quality Improvement and implementing service improvements across an organisation.
• Skilled in programme planning, financial management, and resource optimisation.
• Ability to lead with innovation and evaluate impact using data and feedback.
• Excellent communication and stakeholder engagement skills, including at senior levels.
• Committed to inclusive, collaborative leadership and continuous team development.
• Strong risk management capabilities, with confidence in problem-solving and adapting approaches.
• Experience overseeing supplier relationships and contract management.

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.

• You need to have the right to work in the UK.

• Home-based.
• Occasional travel to our offices in Northampton and London.

• To support an inclusive application process, we are open to receiving alternative applications from candidates who may find it difficult to complete our online form. If you would like to apply via video or audio file, please send your recorded application - ensuring you cover the supporting statement aspect - to .
• We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders. As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

The job vacancy information provided here is from third-parties and the AAE cannot guarantee the accuracy of the information.